Defined by My Diagnosis? NOT! – Part 1 – The Intro


About a year ago I was diagnosed with Fibromyalgia – lovingly known as Fibro: a disease seen most in those who suffer chronic inflammation and believed to be the breakdown of normal pain reception, causing the sufferer to feel pain more deeply and constantly. The constant sensation of pain wears a person down, too often dictating and defining their life experience. Overwhelmed by unceasing pain and the quest for relief, they often topple to the experience, all of life dictated by their level of pain.

One thing I have discovered and decided in my journey with the diagnosis of Fibro is “that is not the life I want.” I do not want to be dictated and defined by my pain, so I have thought a lot the past several days about the problem of being “defined by my diagnosis” – a phrase used in conversation with a friend one day, and what that phrase means to me and for me.

That phrase, “defined by my diagnosis”, has come to me so many times since my lunch with Betty, my friend I came to learn has dealt with fibro for numerous years. She shared that she used to do all the research for her fibro and join all the support groups and try to follow all the advice. Then she got tired of being “defined by my diagnosis”. Thus she decided to stop all that and live her life defined by the love and pursuit of God.

That is where I am right now: being defined and dictated by my diagnosis. So over the past several days of that phrase flowing to my heart, I have sought the Lord, seriously considering what being defined by fibro means and how to change it. For the next few days I will share here the things God is showing me. Perhaps others who have health issues will be helped through the comfort and instruction God is giving me. As I introduce this subject, I join Paul’s heart in praying for those of us who have health issues that tend to dictate life, praying:

“For this reason also, since the day we heard of it, we have not ceased to pray for you and to ask that you may be filled with the knowledge of His will in all spiritual wisdom and understanding, so that you will walk in a manner worthy of the Lord, to please Him in all respects, bearing fruit in every good work and increasing in the knowledge of God; strengthened with all power, according to His glorious might, for the attaining of all steadfastness and patience; joyously giving thanks to the Father, who has qualified us to share in the inheritance of the saints in Light” (Colossians 1:9-12).

Seeking God’s direction and inspiration in determining what I need to realize and address in changing this thing that is trying to define my life, the things that come to mind and that I will cover beginning tomorrow include:

  • Know the enemy – what is this thing that is trying to define me and my ability to live? – Not so much the science “what” but the personal, experiential “what”? Realizing that…
  • Know the truth – What are lies about the disease that I am catering to? Lies about myself and my ability to cope? What is the truth of the matter, from God’s perspective? And how do I live in truth? Then…
  • Understand that I am me – the only me that I am. My disease experience may be common to man, but it is affected and made different by my own experience of it and my ability to cope with it in accord with the person I am and choose to be. In that understanding…
  • Discern my limitations – Instead of letting my experience of the disease set the boundaries, I must learn how to protect from its limitations by setting my own, realizing what I can do when and knowing when it is okay to push the envelope and when it is time to rest. Finally…
  • With these truths and insights under my belt, I can live life to the full knowing that truth sets free indeed, wisdom directs the path, and faith, hope and love abide: and the greatest of these is love.  

Even if you are currently in good health, I hope you return for the remainder of this series so you can store up any insights gleaned to share with others, and for use should an enemy assailant strike you.

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